Natalia
Natalia had her first seizure at 16 weeks old and was diagnosed with Dravet Syndrome at age 2. Her mum, Nikita, tells their story.
For Families
If you are living with Dravet Syndrome, you're not alone. Find out more about the support we provide to families affected by Dravet Syndrome, including our annual Center Parcs weekend, our assistance grants and how to join us.
For Healthcare Professionals
Whether you suspect a patient in your care may have Dravet Syndrome, or want to find out more about the underlying causes of the condition, or you're looking for information on supporting caregivers and their families, there's something here for you.
Every Day in May 4 Dravet
Join this amazing challenge, masterminded by Tats Ward, Auntie to Dom who lives with Dravet Syndrome. Cover 5km or 2km Every Day in May 4 Dravet!
Join Us
We support all families affected by Dravet Syndrome. Find out how we can support you and your family here.
Please donate to help us support families, educate professionals and fund research
The Impact of Your Donations
Every one of our supporters’ fundraising efforts truly does make a difference, enabling us to carry out our mission to improve the lives of all those affected by Dravet Syndrome in the UK.
Read MoreDravet Journeys
Real life insights about living with Dravet Syndrome shared by our amazing community of families.
