© 2012 Dravet Syndrome UK, All rights reserved
Registered Charity No: 1128289

Dravet Syndrome UK

To support families affected by Dravet Syndrome, and other related genetic sodium channel epilepsies, practically, emotionally and financially.

To Advance Education

At Dravet Syndrome UK we aim to reach as many professionals working in the field of epilepsy as possible to increase knowledge of what is still considered a rare condition. This includes both paediatric and adult neurologists, epilepsy nurse specialists, dieticians and those people who are working directly with Dravet patients.

We provide literature, a helpline telephone number and attend regular conferences with our information and display stand.

Conference attended in 2010:
NCYPE Parent and Family Conference
Global Symposium and Dietary Treatments for Epilepsy

Conferences attended/attending 2011:
The 6th National Neuroscience Conference: Epilepsy in Children
JEC Annual Conference
American Epilepsy Society Annual Conference

 

We have produced a short DVD in conjunction with Professor Helen Cross and Dr Rima Nabbout to be used as an educational tool. To request free copies of the DVD please contact Marie Baker using the contact form.