About Us

About Us

Dravet Syndrome UK is an independent UK charity dedicated to improving the lives of those affected by Dravet syndrome through support, education and medical research.

The charity was founded in October 2008 and registered with the Charity Commission of England and Wales in January 2009. It was founded by parents looking for support and information about treatments and research, all of which was sadly lacking in the UK at that time. Since the charity was founded the membership has risen from just thirty families to almost four hundred.

Read more about what we do