Growth and Nutrition Concerns

These cover a range of issues, including a so-called ‘failure to thrive’ (underweight, slow growth, small stature), osteopenia (poor bone density), scoliosis (curvature of the spine), and problems with eating, appetite or with the absorption of nutrients. 

Each child is unlikely to get all of these issues, but around 60% of children with Dravet Syndrome show some growth and nutrition issues of varying extent.

If you have concerns about nutrition and growth, a referral to a local dietician is good first step. 

Ketogenic Diet

Some individuals with Dravet Syndrome benefit from a medically prescribed 'Ketogenic' diet. Find out more here.

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