Transition to Adulthood
Transitioning to adult services, when a young person with Dravet Syndrome reaches the age of 16 and beyond, can be a very unsettling process for many families.
It encompasses significant changes in the organisation of care for your child, touching on all aspects of life with Dravet Syndrome – including medical and social care, education, finance and legal rights.
Click on the images below to find out more about supporting your child with Dravet Syndrome transition to adulthood.
Preparing for Transition
Its important to start preparing early (around the ages 13-14)! Here we share 7 key steps in the transition process.
Impact on Family Life
Advice on how to cope with changes that might occur when your child with Dravet Syndrome reaches puberty and early adulthood.
16+ Assistance Fund
A DSUK grant available for families living with one or more adults with Dravet Syndrome, aged 16 and over.
Guidance and Further Information
Useful links for further help and advice on the transition to adulthood.