Helen Evans


For the past 10 years I’ve had the privilege of being a charity Director, something I’m thrilled to continue with my appointment as Director of Dravet Syndrome UK in 2019.

I found my passion for the charity sector when I was 14 and began volunteering as a home-help.  I loved volunteering and continued for the next 15 years alongside a successful career in Human Resources.

In 2008 I moved into the aid sector heading up Oxfam GB’s Human Resources function in the Middle East.  In 2012 I went on to lead Oxfam GB’s global Safeguarding function, and later campaigned successfully for changes in UK law to better safeguard beneficiaries from abuse.

In recent years I’ve been Chief Executive of rare disease charity Cavernoma Alliance UK and Oxfordshire advocacy service Getting Heard. In this time, I’ve worked with families across the UK to provide much needed care and support, as well as driving forward important research.

In my home-life I’m a mum to my wonderful son Sammy and his therapy dog Lizzie who I’m training. My son has autism with pathological demand avoidance and whilst life can have its twists and turns, it’s endlessly rewarding.