Neil Williamson

Neil Williamson is a Children’s Epilepsy Nurse Specialist at Lewisham and Greenwich NHS trust, and South of England and Wales Clinical Coordinator for Over the Wall (part of the Serious Fun Camps founded by Paul Newman). 

Neil has been a nurse for over ten years with a special interest in Epilepsy. He has worked in Acquired Brain injury units, Acute Neurology, Cardiac and Metabolic services, and Palliative Care. 

Neil worked for 8 years at Richard House Hospice, meeting many children with Dravet Syndrome. Here he gained understanding into the complex needs of these young people. He focused a lot of attention on building a comprehensive transition service for young people within palliative care services to support and maximise their potential as they emerge into adulthood. 

Now working in the community as a specialist Epilepsy Nurse, Neil has many young people under his care with Dravet Syndrome. He is fascinated by the complexity of Dravet Syndrome and passionate about ensuring these young people and their families are supported to live their lives as fully as possible and maximise their experiences. 

He is involved in shaping national pieces of work, such as the Marie Curie Transition Project. He is currently helping the Royal College of Paediatrics develop a national young people’s epilepsy passport to make sharing information easier.