Neil Williamson

Neil Williamson

Neil Williamson is a Children’s Epilepsy Nurse Specialist who runs his own independent nursing and training service and also works at Lewisham and Greenwich NHS trust. 

Neil has been a nurse for 20 years with a special interest in Epilepsy and neurology. He has worked in Acquired Brain injury units, Acute Neurology, Tourette Syndrome, Epilepsy, Cardiac, Metabolic services and Palliative Care and works often with children and young people with complex needs and disabilities. 

Neil worked for 9 years at Richard House Hospice and as an epilepsy nurse for 7 years, meeting many children and families living with Dravet Syndrome. Here he gained understanding into the complex needs of these young people. He focused a lot of attention on building a comprehensive transition service for young people within palliative care services to support and maximise their potential as they emerge into adulthood. 

Now working in his own practice and the NHS and for several charities, Neil has many young people under his care with Dravet Syndrome. He is passionate in supporting families living with Dravet Syndrome and passionate about ensuring these young people and their families are supported to live their lives as fully as possible and maximise their experiences.