I am Teresa Finch, married to Stephen and we have three wonderful children.
Amy is 20 years old and was diagnosed with Dravet syndrome at the age of 3. We are currently going through the dreaded transition process with her. We also have Ellie, 17 years old and is a god send to us, I don’t know what we would do without her! And last but no means least is our little boy Louie, 9 years old. After coping with Dravet syndrome pretty much on our own for 16 years, finding Dravet Syndrome UK made a huge difference to us as a family but more importantly to Amy.
When I was asked to become a Trustee I was thrilled and honoured and pleased to be able to give something back. I am very passionate about Dravet Syndrome UK and I am very proud to be a part of the team.