Family Gathering Grant
Living with a child or adult with Dravet Syndrome can be an isolating experience. We understand how important and helpful it is to have the opportunity to meet with other Dravet families to share experiences of living with this complex condition.
We are delighted to help families achieve this by offering a grant of up to £10 per person (aged 6 or over) and £5 per child aged 1-5 years old. You may feel that meeting in a café is suitable or, for some, the need for a private room may be required. The grant can be used to hire a suitable meeting room if needed, or it can be put towards the costs of refreshments or even travel. It can also be used to purchase entry tickets to a zoo, theme park, etc.
We hope that this grant will encourage and enable as many people as possible to attend family gatherings.
Guidelines for applications:
- Gatherings must be open to all Dravet families wishing to attend and you will be expected to advertise the gathering on our private forum. If you are not a member on the forum, we will advertise the gathering for you.
- We ask you to submit a ‘Notification of Gathering’ form to us at least two weeks in advance of the event, so that there is enough time to advertise the meeting to all families who might want to attend, and to give them a chance to respond and make arrangements.
- Members from a minimum of four different families must attend the gathering to qualify for a grant. The names of those attending will need to be given to us prior to the event and the grant will be sent to you in advance of the gathering. Please note that after the event you will be required to submit receipts. Each group can claim up to a maximum of two gatherings a year.
If you have any questions regarding the grant, please email firstname.lastname@example.org.