Family Gathering Grant

Living with a child or adult with Dravet Syndrome can be an isolating experience. We understand how important and helpful it is to have the opportunity to meet with other Dravet families to share experiences of living with this complex condition. 

We are delighted to help families achieve this by offering a grant of up to £10 per person (aged 6 or over) and £5 per child aged 1-5 years old. You may feel that meeting in a café is suitable or, for some, the need for a private room may be required. The grant can be used to hire a suitable meeting room if needed, or it can be put towards the costs of refreshments or even travel. It can also be used to purchase entry tickets to a zoo, theme park, etc. 

We hope that this grant will encourage and enable as many people as possible to attend family gatherings. 

Guidelines for applications:

If you have any questions regarding the grant, please email