DSUK survey: impact of COVID-19 in Dravet Syndrome

In June/July 2020, DSUK conducted a survey to understand the risks, impact and outcome of COVID-19 in people affected by Dravet Syndrome. 

An anonymous cross-sectional online survey was conducted between 17th June and 13th July 13 2020, with responses from 116 parent/carers of children (74%) and adults (26%) with Dravet Syndrome. The full findings from the survey are published in peer-review medical journal, Acta Neurologica Scandinavica, and can be viewed online at https://doi.org/10.1111/ane.13405.

Key findings from the survey include:

Professor Sanjay Sisodiya, a member of the DSUK Medical Advisory Board and Professor of Neurology at UCL Queen Square Institute of Neurology, commented. “While this is only a small, retrospective survey and lacks test data on infection and antibody status, it nevertheless provides valuable insights that help us better understand the impact of COVID-19 on the Dravet Syndrome community”. 

Topline results from second DSUK survey on the impact of COVID-19 provide reassurance for people affected by Dravet Syndrome

The results of our second COVID-19 survey, conducted in February 2021, including vaccination experience for adults with Dravet Syndrome.

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