Dravet Stories

Receiving a diagnosis of Dravet Syndrome can be a frightening experience. Its important to remember you are not alone - other families are going through similar experiences. Here we share their stories. 

We have gathered together a number of case study stories and videos featuring children from our Dravet Community. Find stories through clicking on the filters, try searching for specific words e.g. "seizures", or simply browse the stories by clicking on the arrows. Always remember that, even though their symptoms and experiences may be similar, all children with Dravet Syndrome are different and can present differently. 

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