Family support

Family Support

Dravet Syndrome UK was founded in 2008 with ‘Supporting families’ listed as one of the three aims registered with the Charity Commission.

The charity supports families in a number of ways, such as ‘The Night-time Monitoring Scheme’, ‘The Adult Assistance Fund’, organising and facilitating family meet ups, organising and facilitating a biennial family conference, running and moderating a private online forum and providing support to families through a telephone helpline.

Dravet syndrome can be a very isolating condition, which is why family support is an integral part of the charity.