If they are being monitored on a Pulse Oximeter Machine during a seizure the monitor will sound an alarm, informing the parents/carers who will then be able to administer emergency treatment if necessary. The pulse oximeter is attached to the patient by a sticky probe generally on the toe.
Unfortunately these machines are not routinely available on the NHS. We currently provide the ‘SPECTR™ 02 30′ model with each machine costing in the region of £800 (price includes all of the accessories families will need).
The feedback we have received is that they can be tricky to use with very mobile patients or those with challenging behaviour.
Important: Pulse Oximeters and other monitoring equipment is provided by Dravet Syndrome UK in an assistive capacity only. The intention of provision is to assist in management of an individual and their condition and symptoms, to help minimise risk. Monitoring devices are assistive only and must not be used in substitute for observing clinical signs. Dravet Syndrome UK can accept no liability for the accuracy of monitoring equipment nor any consequences resulting from reliance on the device, or actions of a patient, carer, medical practitioner or other individual resulting from use of the device.