Families Resources

Guidance for care providers

Guidance for Care Providers

Dravet syndrome is an unpredictable, complex and little known condition. Families describe the demands of caring for a child or dependent adult who has complex epilepsy and a wide range of other challenging symptoms as immense.

Amongst current providers of respite or support, a significant lack of knowledge of the condition characterised early contact with families; and the complexities of the condition were not always understood or catered for. This guide seeks to address these gaps.

Download the Guidance for Care Providers