Young Epilepsy exists to improve the lives of children and young people with epilepsy to enable them to fulfil their potential and ensure they have the best quality of life. They run a school, further education college and produce publications and resources, which families may find useful:
Together for Short Lives
The leading UK charity that speaks for all children with life-threatening and life-limiting conditions and all who love and care for them.They provide information, publications and resources, which families may find useful:
British Paediatric Neurology Association
The British Paediatric Neurology Association is the professional organisation for doctors who specialise in the care of children with neurological disorders.
Dravet Syndrome Foundation
A US organisation aggressively raising research funds for Dravet syndrome and related epilepsies; as well as increasing awareness of these catastrophic conditions; and providing support to affected individuals and families.
Epilepsy Action is a leading UK epilepsy organisation set up to improve the lives of anyone affected by the condition. It is a member-led association and represents people with epilepsy, their families, carers, friends and professional healthcare workers.
Scope is a charitable organisation providing information and support to disabled people and their families and to help make the UK a place where people with disabilities have the same opportunities as everyone else.
Cerebra is a national charity that helps to improve the lives of children up to sixteen years of age who have brain-related conditions, and their families and carers, through support, education and research.