Why Fundraise for Us?

Each year we need to raise over £320,000 to keep providing our much needed services. In 2018/19, for every £1 spent 80p was spent on charitable activities, 20p on fundraising and a negligible amount on generating income.


Every one of our supporters’ fundraising efforts truly does make a difference. For example £1,000 pays for a Pulse Oximeter Package for one family, £250 pays for an epilepsy mattress monitor (MedPage Monitor) for one family and £200 pays for a video monitor for one family. These monitors help save lives and we are committed to providing them without a waiting list for any Dravet family that applies.

Thank you from us all for helping to improve the lives of those affected by Dravet Syndrome.

Fundraising Tips

10 easy steps for organising a fundraising event for Dravet Syndrome UK.

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