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*Who we are

We, in this instance, are the Dravet Syndrome UK and the third parties we employ to help run our charity. Please read our privacy policy for full details.

What we will do with your data

We’ll use your data and your permissions above just for activities related to running Dravet Syndrome UK, its website, fundraising activities and services requested through the charity. If you haven’t selected any contact options above, we’ll only contact you with matters about your account on

What we won’t do with your data

We will not sell your data to any third parties. Nor will we pass on your data to any third parties who are not involved in running Dravet Syndrome UK, or the services offered.

Your rights

You can change your mind about these permissions at any time. Just login to and update your preferences information. For a full list of your rights and what we do with your data please visit our updated privacy policy