Welcome to the Dravet Syndrome UK Blog.

This is the hub for our communications and will be frequently updated with relevant articles of interest, newsletter releases, important updates, details of upcoming events and much more so check in whenever you can.

If you would like to feature in the Blog with your case study, event photos or feedback on Dravet syndrome of any kind please email your idea to

CPD points awarded by RCPCH for Dravet Syndrome Professional Conference 2017

As our Biennial Conference 2017, Liverpool approaches in November we are delighted that RCPCH has again approved this activity for CPD in accordance with the current RCPCH CPD Guidelines for those partaking in Professional Day on Friday 17th November.

Zogenix Launch Recruitment website for continued ZX008 Trials in Dravet syndrome

If your son or daughter have been diagnosed with Dravet syndrome and is still suffering uncontrolled seizures despite current medication then you may be interested in FAiRE (Fenfluramine Assessment in Rare Epilepsy). FAiRE is a programme of clinical studies that will ask if an investigational medication called ZX008 can improve seizure control in children and young adults with Dravet syndrome.

Dravet Seeks Supporters and Partners

Dravet Syndrome UK is looking for supporters and partners who can help increase awareness of Dravet Syndrome...

Center Parcs Bookings 2017 – Now Open!

Center Parcs bookings now open and grants for our annual weekend away now available...

Welcome to the Blog

This Blog will be the home of future news and updates and shall cover everything from the latest medical research papers to updates on our Conference speakers...