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Support International Dravet Day 2017

Friday 23rd June is world International Dravet Awareness Day! Help us raise awareness by downloading and displaying our poster.

Back to the Forest - Center Parcs Update 2017

Next month sees us heading to our Annual Weekend Away at Center Parcs, Sherwood Forest on 19th-22nd May 2017. With only a short time to go, we are busy making final arrangements for what we are certain will be another fun packed weekend! To help you plan your weekend at Center Parcs we wanted to share our updated plans for the weekend. On Friday 19th May we shall be holding a Family gathering at The Sport’s Cafe, from 17:30-20:30. Our team will be in the sports bar to welcome families so please feel free to pop by and say hello, with food and drinks available to purchase. It is a great opportunity for families to meet and get together early in the weekend. No area has been reserved BUT as always you can spot and follow the Dravet butterfly on t-shirts and bags!

Dravet European Foundation presented with EURORDIS Award

We would like to congratulate DSEF (Dravet Syndrome European Foundation) on the EURORDIS Award 2017! The EURORDIS Awards recognise outstanding commitment and achievements of patient organisations, volunteers, companies, scientists, media and policymakers who have contributed to reducing the impact of rare diseases on people’s lives. Dravet Syndrome UK is a member of the DSEF, a co-operative of charities working to fund and raise awareness of Dravet syndrome across Europe.

CPD points awarded by RCPCH for Dravet Syndrome Professional Conference 2017

As our Biennial Conference 2017, Liverpool approaches in November we are delighted that RCPCH has again approved this activity for CPD in accordance with the current RCPCH CPD Guidelines for those partaking in Professional Day on Friday 17th November.