Introducing DSUK's New Director, Sarah Pearce

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Posted 6th April 2022 in News

Dravet Syndrome UK is delighted to announce that Sarah Pearce, formerly MD at Faversham Counselling Service, has joined the charity as Director. 


Dravet Syndrome UK is the only independent, UK charity dedicated to improving the lives of those affected by Dravet Syndrome, a catastrophic form of epilepsy that occurs in around 1 in 15,000 births. 

Sarah’s appointment comes at an exciting time for Dravet Syndrome UK, which has grown from supporting 30 to more than 600 parents and caregivers, providing vital support, education, and research services, underpinned by a world class medical advisory board. 

Galia Wilson, Chair Trustee for Dravet Syndrome UK, says: “We are thrilled to welcome Sarah as our new Director. Dravet Syndrome is a devastating diagnosis and affected families face many challenges. Last year, we launched a five-year strategy, setting out a roadmap to address these needs. With her wealth of experience in the sector and her passion for supporting families with complex needs, Sarah will help us to achieve our goals to reach and empower more families, deliver research that puts family needs first, and improve awareness and understanding amongst professionals.”

Sarah says: “This is a fantastic time to join DSUK. It is taking the lead for families living with Dravet Syndrome and aiming to ensure that they are at the core of the charity’s work, whether that is supporting families, working with health and social care professionals, research or enabling self-advocacy for those families. I will be bringing my experience from previous roles with Royal Mencap and the Epilepsy society and my passion and commitment to those wanting their voices heard”. 

Sarah has 18 years’ experience in fulfilling senior management and leadership roles within the Health and Social Care sector. Prior to her role at Faversham Counselling Services, she worked for the Epilepsy Society in a national role as Head of Regional Services throughout England. Previous roles include National Head of Community Services at the Royal Mencap Society. She has a Master’s degree in Law and trained as a Nurse. 

Sarah takes over from Claire Eldred, who has been interim Director since the departure of previous Director, Helen Evans in 2021. Claire now resumes her position as Head of Marketing and Communications at Dravet Syndrome UK.

DSUK's Five Year Strategy

In 2021, we launched a forward-looking strategy to reach and empower more families, deliver research that puts family needs first, and improve awareness and understanding amongst professionals. Find out more here.

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Meet the rest of the team!

Sarah joins our dedicated team of staff and Trustees. Find out more about who we are and our roles at DSUK here.

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