A UK wide study exploring the impact on caregivers of those living with Dravet Syndrome has revealed that 90% were unable to continue working due to the sense of ‘constant struggle’.
We're delighted to announce that we have been selected by the Chan Zuckerberg Initiative (CZI) to receive $800,000 (approximately £600,000) over five years to accelerate our research programme.
We are incredibly proud to announce two unique research projects in collaboration with the Epilepsy Research Institute.
Results from the DSUK Family Survey describe the profound impact that living with Dravet Syndrome has on families.
The SCN1A Horizons Natural History study recruits first patients
We're delighted to announce a funding collaboration with the new Epilepsy Research Institute on their inaugural grant round.
