Natalia
Natalia had her first seizure at 16 weeks old and was diagnosed with Dravet Syndrome at age 2. Her mum, Nikita, tells their story.
Join us
If you are living with Dravet Syndrome, you're not alone. Find out more about the support we provide to families affected by Dravet Syndrome, including our annual Center Parcs weekend, our assistance grants and how to join us.
DSUK Conference - Parent/Carer Day
Our Parent/Carer Day can be viewed on-demand from Monday 20th November to Friday 8th December inclusive. Find out more here.
DSUK Conference - Professional Day
The Professional Day conference, which took place on Friday 17th November can now be viewed on-demand, until Friday 8th December.
Please donate and help us support families through COVID-19
The Impact of Your Donations
Every one of our supporters’ fundraising efforts truly does make a difference, enabling us to carry out our mission to improve the lives of all those affected by Dravet Syndrome in the UK.
Read MoreDravet Journeys
Real life insights about living with Dravet Syndrome shared by our amazing community of families.
