Harry
Harry was diagnosed with Dravet Syndrome at 16 months old. His mum, Beth, shares their story.
Dedicated to improving the lives of those affected by Dravet Syndrome through support, education and medical research.
Read MoreIf you are living with Dravet Syndrome, you're not alone. Find out more about the support we provide to families affected by Dravet Syndrome, including our annual Center Parcs weekend, our assistance grants and how to join us.
Find out about our research collaboration with Dr Lisa Clayton exploring feeding difficulties in Dravet Syndrome.
Join this amazing challenge, masterminded by Tats Ward, Auntie to Dom who lives with Dravet Syndrome. Cover 5km or 2km Every Day in May 4 Dravet!
Whether you suspect a patient in your care may have Dravet Syndrome, or want to find out more about the underlying causes of the condition, or you're looking for information on supporting caregivers and their families, there's something here for you.
We support all families affected by Dravet Syndrome. Find out how we can support you and your family here.
Every one of our supporters’ fundraising efforts truly does make a difference, enabling us to carry out our mission to improve the lives of all those affected by Dravet Syndrome in the UK.
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