© 2012 Dravet Syndrome UK, All rights reserved
Registered Charity No: 1128289

Dravet Syndrome UK

To support families affected by Dravet Syndrome, and other related genetic sodium channel epilepsies, practically, emotionally and financially.
  • Lyle Hughes

    We were saddened to hear of the passing of Lyle Hughes, grandmother to Rebekah, on the 14th February. On behalf of all the trustees, we would like to say thank you to Lyle’s son Haydn for asking for donations to [...]

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  • Dravet Dad sets up epilepsy support group ‘HOPE’

    Scott Liddle, dad to Thomas and Poppy has set up a support service for children with epilepsy and their families based in London. Children with epilepsy and their siblings can meet each other and have some fun, whilst parents can [...]

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  • Meet New Patron: Phillips Idowu

    Dravet Syndrome UK are absolutely delighted to introduce our new patron Phillips Idowu. Phillips is an international triple jumper who has been competing at senior level for over 10 years. Phillips was initially introduced to the charity through Sarah Page [...]

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  • American Epilepsy Society Meeting

    In December, Chairperson Marie Baker travelled to Baltimore to attend the 65th annual American Epilepsy Society Meeting. The AES Annual Meeting is the premier meeting for epilepsy and brings delegates from all over the world. As well as a great [...]

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  • Woburn Golf Day Raises £15,000

    On the 20th October 2011 we held a charity golf day at Woburn Golf Club. It was a beautiful sunny day which really showed the fantastic Woburn course off well. The golfers started to arrive from 8am and were all [...]

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Welcome to Dravet Syndrome UK

Dravet Syndrome UK is an independent UK charity (registration number 1128289) dedicated to improving the lives of children and adults living with Dravet Syndrome and other related genetic sodium channel epilepsies through medical research, education and awareness and appropriate support.

Dravet Syndrome is a catastrophic neurological condition causing severe seizures alongside other conditions such as learning disability, ataxia and autism.

 

Family and Professional Dravet Conference

Saturday 17th November 2012
The Park Royal Hotel, Warrington Cheshire

This one-day conference is aimed at families and professionals and aims to bring delegates the most up to date research, advancements and information on Dravet Syndrome.

Confirmed speakers include:

  • Professor Helen Cross. The prince of Wales’s Chair of Childhood Epilepsy UCL – Institute of Child Health, Great Ormond Street Hospital for Children NHS Trust, London & Young Epilepsy, Lingfield, Surrey.
  • Professor Sanjay Sisodiya. Professor of Neurology – UCL Institute of Neurology, London.
  • Dr Elaine Highes. Paediatric Neurosciences Dept. Kings College Hospital, London and Paediatric Neurology Dept. Evelina Children’s Hospital, London.
  • Dr Sameer Zuberi. Consultant Paediatric Neurologist – Royal Hospital for Sick Kids, Glasgow

To compliment the main presentations round table discussions will be held on topics such as mainstream schooling, further education, transition, sibling support and first aid.

A full itinerary will be available soon but delegates are advised to book early to avoid disappointment.

Delegate Prices