Welcome to Dravet Syndrome UK
Dravet Syndrome UK is an independent UK charity (registration number: 1128289) dedicated to improving the lives of children and adults living with Dravet Syndrome and other related genetic sodium channel epilepsies through medical research, education and awareness and appropriate support.
Dravet Syndrome is a catastrophic neurological condition causing severe seizures alongside other conditions such as learning disability, ataxia and autism.
Dravet Syndrome UK are thrilled and excited to announce we have been awarded a grant from Genetic Disorders UK, the national charity that organises the annual fundraising day, Jeans for Genes.Posted on February 14
Today Dravet Syndrome UK (DSUK) can announce we are to receive a grant for nearly £10,000 from Genetic Disorders [More]
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What is Dravet Syndrome?
First described by French physician Dr. Charlotte Dravet in 1978, Dravet syndrome (previously known as Severe Myoclonic Epilepsy of Infancy, or SMEI) is a neurodevelopmental disorder beginning in infancy, characterised by intractable seizures...
When a child / adult receives a new diagnosis, more often than not the first thing a parent or carer will do is research the condition and try to read up on other people who have the same diagnosis....
How you can Help!
Dravet Syndrome UK relies on fundraising and donations to continue funding medical research and supporting families. There are a number of ways that people can help...