• Center Parcs Annual Weekend Away

    Dravet Families 6th Annual Weekend Away

    Center Parcs weekend, which this year will be 13th-16th June, is the highlight of the DSUK calendar.
  • latest case study

    Latest Case Study

    Arlo Wilson was born in late October 2007, on his due date. He was a good size and we were thrilled to meet our little boy and take him home....
  • Super Siblings

    Super siblings

    Siblings of those diagnosed with Dravet Syndrome do not experience a typical upbringing. They are often exposed to many experiences that would upset and shock an adult, never mind a child....
  • join us

    Make a difference and join us today!

    If you would like to join our database, Dravet Syndrome UK will keep you up to date with upcoming research news, information and family events through mailings and emails.
  • how you can help: fundraise

    Get involved: Fundraise!

    If you have any questions or would like to chat with us about your fundraising ideas please do get in touch, we’d love to hear from you.....
  • how you can help: donate!

    Get involved: Donate!

    At the moment there are 2 ways to donate to Dravet Syndrome UK....
  • Horwich St Marys football team

    Download our newsletter now!

    Dravet Syndrome UK produce a quarterly newsletter, keeping people updated on events and information relating to the condition and the charity.....

Welcome to Dravet Syndrome UK

Dravet Syndrome UK is an independent UK charity (registration number: 1128289) dedicated to improving the lives of children and adults living with Dravet Syndrome and other related genetic sodium channel epilepsies through medical research, education and awareness and appropriate support.

Dravet Syndrome is a catastrophic neurological condition causing severe seizures alongside other conditions such as learning disability, ataxia and autism.

Latest NEWS


New Family Gathering Grant

Posted on April 14

Dravet Syndrome UK understand how isolating it can be to have a child with Dravet Syndrome, and how important [More]

Upcoming EVENTS


DSUK 6th Annual Family Weekend Away

More details to follow but to read about last years fantastic weekend click here. For more information please contact Rachel.s@dravet.org.uk [More]

What is Dravet Syndrome

What is Dravet Syndrome?

First described by French physician Dr. Charlotte Dravet in 1978, Dravet syndrome (previously known as Severe Myoclonic Epilepsy of Infancy, or SMEI) is a neurodevelopmental disorder beginning in infancy, characterised by intractable seizures...

Find out more about Dravet Syndrome »

Case Studies

Case Studies

When a child / adult receives a new diagnosis, more often than not the first thing a parent or carer will do is research the condition and try to read up on other people who have the same diagnosis....

Read the latest case studies »

How you can help

How you can Help!

Dravet Syndrome UK relies on fundraising and donations to continue funding medical research and supporting families. There are a number of ways that people can help...

How to join in, donate, or fundraise »