For Families
Welcome to the area of our website that is dedicated to families. Here you can find useful information and get practical support in navigating the day to day challenges of living with Dravet Syndrome.
At DSUK, we’re here to guide you through these challenges, provide support and reassure you that you and your family are not alone. Our Dravet Community is here to support you every step of the way. Click on the images below for detailed guidance and advice.
Apply for Grants
Find out detailed information about the various grants, assistance fund and awards that we provide for families.
Dravet Stories
Real life insights into living with Dravet Syndrome shared by our amazing community of families.
Center Parcs Weekend
Once a year we bring our Dravet families together at Center Parcs in Nottingham for an amazing weekend of fun and community support - read about it here.
Parent/Carer Conference
Every two years we bring together experts with parents and carers to explore the many complexities of the Dravet Syndrome and discuss latest developments.
Super Siblings
Insights into life as a sibling of a brother or sister living with Dravet Syndrome and suggestions for providing support.
About Dravet Syndrome
A comprehensive introduction to the clinical aspects of living with Dravet Syndrome.
In Loving Memory
A tribute to loved ones, sadly lost too soon to Dravet Syndrome.
Useful Links
A list of organisations that provide helpful services and additional support.
