Support for Families Overseas

Dravet Syndrome UK is a UK-based charity and as such we are only able to support families based in England, Wales, Scotland and Northern Ireland.

If you are a family residing outside of the UK and you are looking for information on how to get a diagnosis, availability of treatments and other support local to your country, then unfortunately we are unable to advise and can only signpost you to a local organisation.

Below is a helpful list of other Dravet Syndrome associations or Epilepsy associations to contact for more information and advice.


Dravet Syndrome European Foundation, including the following European countries:

Croatia - Dravet Sindrom Hrvatska

Denmark - Dravet Danmark

France - Alliance Syndrome de Dravet

Germany - Dravet Syndrom e.V.

Italy - Dravet Italia Onlus

Italy - Gruppo Famiglie Dravet

Ireland - Dravet Syndrome Ireland

Netherlands - Stichting Dravet Syndroom Nederland/Vlaanderen

Norway - Epilepsiforbundet Dravet syndrom

Poland - Dravet.Pl

Portugal - Associacao Sindrome de Dravet Portugal

Serbia - Dravet Sindrom Srbija

Slovenia - Dravet Slovenija

Spain - Apoyo-Dravet

Spain - Fundación Síndrome de Dravet

Sweden - Dravets Syndrome Sweden

Switzerland - Dravet Schweiz Syndrome Association

International League Against Epilepsy (ILAE) - European Chapters


USA - Dravet Syndrome Foundation USA 

International League Against Epilepsy (ILAE) - North America Chapters

International League Against Epilepsy (ILAE) - Latin America Chapters


International League Against Epilepsy (ILAE) - Africa Chapters

Asia & Oceania

Japan - Dravet Syndrome Japan

India - Organisation for Rare Diseases India

International League Against Epilepsy (ILAE) - Asia & Oceania Chapters

Eastern Mediterranean

International League Against Epilepsy (ILAE) - Eastern Mediterranean Chapters