Scarlett
Scarlett was born in 2014 and was diagnosed with Dravet Syndrome aged 2 years old
Find out more about Dravet Syndrome
If you're a newly diagnosed parent or carer looking for more information, or if you're a healthcare professional and you suspect Dravet Syndrome, you've come to the right place.
Join Us
By joining our Dravet community you will gain access to the comprehensive range of emotional, practical and financial support services that we provide to families affected by Dravet Syndrome.
5 Million Steps Challenge
DSUK are aiming to complete 5 million steps in the International Bureau of Epilepsy's global 50 Million Steps challenge. Will you join us?
DSUK Conference 2021
Our 2021 conference educated 100 health care professionals and empowered 180 parents/carers from around the world. Read more here.
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The Impact of Your Donations
Every one of our supporters’ fundraising efforts truly does make a difference, enabling us to carry out our mission to improve the lives of all those affected by Dravet Syndrome in the UK.
Read MoreDravet Journeys
Real life insights about living with Dravet Syndrome shared by our amazing community of families.
