Tom
Tom was born in 1993 and diagnosed with Dravet Syndrome when he was 14 years old. He's now a young adult, living at home with his parents.
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Find information about Dravet Syndrome
If you're a newly diagnosed parent or carer looking for more information, or if you're a healthcare professional and you suspect Dravet Syndrome, you've come to the right place.
New Resource: Genetics of Dravet Syndrome
Visit our brand new online resource about the genetic mutations that cause Dravet Syndrome, genetic testing and what advances in understanding mean for future treatments.
Visit our Dravet Syndrome and COVID-19 Resource Hub
Our online resource hub has been developed with our Medical Advisory Board, chaired by Professor Helen Cross, and contains advice, information and support services specific to coping with Dravet Syndrome during the coronavirus lockdown and beyond.
Buy tickets for the DSUK Parent/Carer and Professional Conferences
We're thrilled that our biannual conference is now confirmed. Our Parent/Carer Conference is taking place on Saturday 20th November, from 9am-4.30pm, at the Macdonald Burlington Hotel in Birmingham. We will also be live-streaming the conference to enable parents/carers to attend virtually. Our Professional Conference is taking place on Friday 19th November, from 9am-2pm. This meeting will be fully virtual. To find out more and to your book tickets click the link below.
Book ticketsDravet Journeys
Real life insights about living with Dravet Syndrome shared by our amazing community of families.
