Sanvi
Sanvi had her first tonic-clonic seizure at 8 months old. Her parents, Jaish and Aditi, share their Dravet Journey.
Dravet Syndrome Awareness Month
June's awareness month was a huge success - thank you to everyone who got involved in 2022. Read all about here.
Find out more about Dravet Syndrome
If you're a newly diagnosed parent or carer looking for more information, or if you're a healthcare professional and you suspect Dravet Syndrome, you've come to the right place.
Support for Families
Find out more about the support we provide to families affected by Dravet Syndrome, including our annual Center Parcs weekend, our assistance grants and how to join us.
Marathon Walk London
Join us on Saturday 10th September on an exciting 26 mile route through London, taking in world-famous sights and less well-known corners.
Please donate and help us support families through COVID-19
The Impact of Your Donations
Every one of our supporters’ fundraising efforts truly does make a difference, enabling us to carry out our mission to improve the lives of all those affected by Dravet Syndrome in the UK.
Read MoreDravet Journeys
Real life insights about living with Dravet Syndrome shared by our amazing community of families.
