Scarlett was born in 2014 and was diagnosed with Dravet Syndrome aged 2 years old
We are thrilled to announce that Tamara Ward, a Dravet Syndrome UK supporter who was the mastermind of the #Run5KeverydayinMay4Dravet challenge, which raised £45,000 earlier this year, has won the ITV Meridian Pride of Britain Award. Tamara was inspired by her nephew, Dominic, who is living with Dravet Syndrome.Read More
If you're a newly diagnosed parent or carer looking for more information, or if you're a healthcare professional and you suspect Dravet Syndrome, you've come to the right place.
By joining our Dravet community you will gain access to the comprehensive range of emotional, practical and financial support services that we provide to families affected by Dravet Syndrome.
Including a dedicated session for newly diagnosed families, updates on research projects, seizure management and treatments, you'll come away with plenty of knowledge, shared experience and a feel for the current landscape of Dravet Syndrome developments.
Every one of our supporters’ fundraising efforts truly does make a difference, enabling us to carry out our mission to improve the lives of all those affected by Dravet Syndrome in the UK.Read More
Real life insights about living with Dravet Syndrome shared by our amazing community of families.