Tom
Tom was born in 1993 and diagnosed with Dravet Syndrome when he was 14 years old. He's now a young adult, living at home with his parents.
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Find information about Dravet Syndrome
If you're a newly diagnosed parent or carer looking for more information, or if you're a healthcare professional and you suspect Dravet Syndrome, you've come to the right place.
New Resource: Genetics of Dravet Syndrome
Visit our brand new online resource about the genetic mutations that cause Dravet Syndrome, genetic testing and what advances in understanding mean for future treatments.
Visit our Dravet Syndrome and COVID-19 Resource Hub
Our online resource hub has been developed with our Medical Advisory Board, chaired by Professor Helen Cross, and contains advice, information and support services specific to coping with Dravet Syndrome during the coronavirus lockdown and beyond.
Survey results: the impact of COVID-19 on people affected by Dravet Syndrome
Data from a survey conducted by DSUK, provides new evidence on the impact of COVID-19 among children and adults with Dravet Syndrome, including the social and psychological impact of shielding.
Find out moreDravet Journeys
Real life insights about living with Dravet Syndrome shared by our amazing community of families.
