Ruby
Ruby was born in 2001. She was diagnosed with Dravet Syndrome aged just nine months..
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Find information about Dravet Syndrome
If you're a newly diagnosed parent or carer looking for more information, or if you're a healthcare professional and you suspect Dravet Syndrome, you've come to the right place.
Read MoreDravet family stories
Real life insights into living with Dravet Syndrome shared by our amazing community of families.
Highlights from our 2019 Conference
Every two years we host the UK's only conference dedicated to Dravet Syndrome. Our most recent conference took place in London on 15th (Professional Day) and 16th (Family Day). See highlights from this meeting here.
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