Latest Coronavirus Guidance for Children and Adults with Dravet Syndrome

We have been closely monitoring developments with regard to Coronavirus and keeping in regular contact with Dravet Syndrome UK's Medical Advisory Board. Click here for the latest statement about the likely impact of the virus for families living with Dravet Syndrome.

Read the latest update

Find information about Dravet Syndrome

If you're a newly diagnosed parent or carer looking for more information, or if you're a healthcare professional and you suspect Dravet Syndrome, you've come to the right place.

Read More

Put a butterfly in your window for Dravet Syndrome.

Looking for things for your Dravet family to do while at home? Print out and colour in our butterfly. Once its done, pin the poster to your window (facing outwards) to show togetherness for Dravet Syndrome and to brighten the day for passers-by.

Download the poster

Our charity partners

XTX Markets Genetic Disorders UK Jeans for Genes Day Dravet Europe