Arlo
Arlo experienced his first tonic-clonic seizure aged 2 months; he was 3 years old when finally diagnosed with Dravet Syndrome.
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Find information about Dravet Syndrome
If you're a newly diagnosed parent or carer looking for more information, or if you're a healthcare professional and you suspect Dravet Syndrome, you've come to the right place.
Read MoreVisit our Dravet Syndrome and COVID-19 Resource Hub
Our online resource hub has been developed with our Medical Advisory Board, chaired by Professor Helen Cross, and contains advice, information and support services specific to coping with Dravet Syndrome during the coronavirus lockdown and beyond.
Read moreLiving with Dravet Syndrome during the COVID-19 lockdown
Watch our short video to find out about the different ways in which DSUK has been supporting Dravet families during the coronavirus pandemic.
Find out moreDravet family stories
Real life insights into living with Dravet Syndrome shared by our amazing community of families.
