Arlo
Arlo experienced his first tonic-clonic seizure aged 2 months; he was 3 years old when finally diagnosed with Dravet Syndrome.
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Latest Coronavirus Guidance for Children and Adults with Dravet Syndrome
We have been closely monitoring developments with regard to Coronavirus and keeping in regular contact with Dravet Syndrome UK's Medical Advisory Board. Click here for the latest statement about the likely impact of the virus for families living with Dravet Syndrome.
Read the latest updateFind information about Dravet Syndrome
If you're a newly diagnosed parent or carer looking for more information, or if you're a healthcare professional and you suspect Dravet Syndrome, you've come to the right place.
Read MorePut a butterfly in your window for Dravet Syndrome.
Looking for things for your Dravet family to do while at home? Print out and colour in our butterfly. Once its done, pin the poster to your window (facing outwards) to show togetherness for Dravet Syndrome and to brighten the day for passers-by.
Download the posterDravet family stories
Real life insights into living with Dravet Syndrome shared by our amazing community of families.
