Find information about Dravet Syndrome

If you're a newly diagnosed parent or carer looking for more information, or if you're a healthcare professional and you suspect Dravet Syndrome, you've come to the right place.

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Visit our Dravet Syndrome and COVID-19 Resource Hub

Our online resource hub has been developed with our Medical Advisory Board, chaired by Professor Helen Cross, and contains advice, information and support services specific to coping with Dravet Syndrome during the coronavirus lockdown and beyond.

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Living with Dravet Syndrome during the COVID-19 lockdown

Watch our short video to find out about the different ways in which DSUK has been supporting Dravet families during the coronavirus pandemic.

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Our charity partners

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