Arlo experienced his first tonic-clonic seizure aged 2 months; he was 3 years old when finally diagnosed with Dravet Syndrome.
If you're a newly diagnosed parent or carer looking for more information, or if you're a healthcare professional and you suspect Dravet Syndrome, you've come to the right place.
Visit our brand new online resource about the genetic mutations that cause Dravet Syndrome, genetic testing and what advances in understanding mean for future treatments.
Our online resource hub has been developed with our Medical Advisory Board, chaired by Professor Helen Cross, and contains advice, information and support services specific to coping with Dravet Syndrome during the coronavirus lockdown and beyond.
Watch our short video to find out about the different ways in which DSUK has been supporting Dravet families during the coronavirus pandemic.Find out more
Real life insights about living with Dravet Syndrome shared by our amazing community of families.