Ruby was born in 2001. She was diagnosed with Dravet Syndrome aged just nine months..
If you're a newly diagnosed parent or carer looking for more information, or if you're a healthcare professional and you suspect Dravet Syndrome, you've come to the right place.Read More
Real life insights into living with Dravet Syndrome shared by our amazing community of families.
Every two years we host the UK's only conference dedicated to Dravet Syndrome. Our most recent conference took place in London on 15th (Professional Day) and 16th (Family Day). See highlights from this meeting here.Find Out More