Vote for Paige's Film

‘Paige’ is a short film about a young family living with DravetSyndrome, shortlisted for the Rare Film Festival's People’s Choice award. Please help us raise awareness of Dravet Syndrome by voting for this film. Click the button below to watch the film and your vote. Thank you!

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Find information about Dravet Syndrome

If you're a newly diagnosed parent or carer looking for more information, or if you're a healthcare professional and you suspect Dravet Syndrome, you've come to the right place.

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Expanding our Professional Advisory Board

We're delighted to announce that Professor Helen Cross OBE, a globally-recognised authority on Dravet Syndrome, is stepping into the newly-created role of Chair, while Dr Andreas Brunklaus joins our expert panel further to his recent research into the natural history of Dravet Syndrome and quality of life expertise. Click the link below for more information.

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Our charity partners

XTX Markets Genetic Disorders UK Jeans for Genes Day Dravet Europe