Arlo
Arlo experienced his first tonic-clonic seizure aged 2 months; he was 3 years old when finally diagnosed with Dravet Syndrome.
Please donate and help us support families through COVID-19
New Dravet-specific online resource for coping with COVID-19 now available
To help support families' needs during the COVID-19 pandemic, we’ve launched a new online resource hub, gathering together advice, information and support services specific to coping with Dravet Syndrome during current lockdown and beyond.
Read moreFind information about Dravet Syndrome
If you're a newly diagnosed parent or carer looking for more information, or if you're a healthcare professional and you suspect Dravet Syndrome, you've come to the right place.
Read MorePut a butterfly in your window for Dravet Syndrome.
Looking for things for your Dravet family to do while at home? Print out and colour in our butterfly. Once its done, pin the poster to your window (facing outwards) to show togetherness for Dravet Syndrome and to brighten the day for passers-by.
Download the posterDravet family stories
Real life insights into living with Dravet Syndrome shared by our amazing community of families.
