Find information about Dravet Syndrome

If you're a newly diagnosed parent or carer looking for more information, or if you're a healthcare professional and you suspect Dravet Syndrome, you've come to the right place.

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Highlights from our London 2019 Conference

Our most recent biennial conference took place on 15th and 16th November 2019 at the Tower Hotel in London. Across two days we brought together over 250 professional & parents/carers with one goal in common - sharing the latest knowledge on Dravet Syndrome. Click here for our highlights video and more.

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Our charity partners

XTX Markets Genetic Disorders UK Jeans for Genes Day Dravet Europe