Ruby was born in 2001. She was diagnosed with Dravet Syndrome aged just nine months..
If you're a newly diagnosed parent or carer looking for more information, or if you're a healthcare professional and you suspect Dravet Syndrome, you've come to the right place.Read More
Real life insights into living with Dravet Syndrome shared by our amazing community of families.
Our most recent biennial conference took place on 15th and 16th November 2019 at the Tower Hotel in London. Across two days we brought together over 250 professional & parents/carers with one goal in common - sharing the latest knowledge on Dravet Syndrome. Click here for our highlights video and more.Find Out More