Find information about Dravet Syndrome

If you're a newly diagnosed parent or carer looking for more information, or if you're a healthcare professional and you suspect Dravet Syndrome, you've come to the right place.

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Highlights from our 2019 Conference

Every two years we host the UK's only conference dedicated to Dravet Syndrome. Our most recent conference took place in London on 15th (Professional Day) and 16th (Family Day). See highlights from this meeting here.

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Our charity partners

XTX Markets Genetic Disorders UK Jeans for Genes Day Dravet Europe