Arlo experienced his first tonic-clonic seizure aged 2 months; he was 3 years old when finally diagnosed with Dravet Syndrome.
If you're a newly diagnosed parent or carer looking for more information, or if you're a healthcare professional and you suspect Dravet Syndrome, you've come to the right place.Read More
Our online resource hub has been developed with our Medical Advisory Board, chaired by Professor Helen Cross, and contains advice, information and support services specific to coping with Dravet Syndrome during the coronavirus lockdown and beyond.Read more
Watch our short video to find out about the different ways in which DSUK has been supporting Dravet families during the coronavirus pandemic.Find out more
Real life insights into living with Dravet Syndrome shared by our amazing community of families.