Arlo experienced his first tonic-clonic seizure aged 2 months; he was 3 years old when finally diagnosed with Dravet Syndrome.
We have been closely monitoring developments with regard to Coronavirus and keeping in regular contact with Dravet Syndrome UK's Medical Advisory Board. Click here for the latest statement about the likely impact of the virus for families living with Dravet Syndrome.Read the latest update
If you're a newly diagnosed parent or carer looking for more information, or if you're a healthcare professional and you suspect Dravet Syndrome, you've come to the right place.Read More
Looking for things for your Dravet family to do while at home? Print out and colour in our butterfly. Once its done, pin the poster to your window (facing outwards) to show togetherness for Dravet Syndrome and to brighten the day for passers-by.Download the poster
Real life insights into living with Dravet Syndrome shared by our amazing community of families.