Ruby was born in 2001. She was diagnosed with Dravet Syndrome aged just nine months..
‘Paige’ is a short film about a young family living with DravetSyndrome, shortlisted for the Rare Film Festival's People’s Choice award. Please help us raise awareness of Dravet Syndrome by voting for this film. Click the button below to watch the film and your vote. Thank you!Vote now
If you're a newly diagnosed parent or carer looking for more information, or if you're a healthcare professional and you suspect Dravet Syndrome, you've come to the right place.Read More
Real life insights into living with Dravet Syndrome shared by our amazing community of families.
We're delighted to announce that Professor Helen Cross OBE, a globally-recognised authority on Dravet Syndrome, is stepping into the newly-created role of Chair, while Dr Andreas Brunklaus joins our expert panel further to his recent research into the natural history of Dravet Syndrome and quality of life expertise. Click the link below for more information.Find out more