New Dravet-specific online resource for coping with COVID-19 now available

To help support families' needs during the COVID-19 pandemic, we’ve launched a new online resource hub, gathering together advice, information and support services specific to coping with Dravet Syndrome during current lockdown and beyond.

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Find information about Dravet Syndrome

If you're a newly diagnosed parent or carer looking for more information, or if you're a healthcare professional and you suspect Dravet Syndrome, you've come to the right place.

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Put a butterfly in your window for Dravet Syndrome.

Looking for things for your Dravet family to do while at home? Print out and colour in our butterfly. Once its done, pin the poster to your window (facing outwards) to show togetherness for Dravet Syndrome and to brighten the day for passers-by.

Download the poster

Our charity partners

XTX Markets Genetic Disorders UK Jeans for Genes Day Dravet Europe