Our News

Dravet Syndrome UK joins new research collaboration to help find early disease clues to help patients with severe epilepsies.

Get involved this June for Dravet Syndrome Awareness Month and tell us, in your own words, what love means to you and your family while living with Dravet Syndrome.

Dravet Syndrome UK has launched the Lived Experience Board to centre the expertise of families in decision-making.

A new experimental treatment for children living with Dravet Syndrome is safe and can reduce seizures considerably according to the findings of a University College London and Great Ormond Street Hospital-led international clinical trial led by Professor Helen Cross.

Join us on Saturday 28th February to spread awareness this Rare Disease Day

Dravet Syndrome UK is delighted to announce the appointment of leading paediatric neurologist Dr Elaine Hughes to their Board of Trustees.

Every Day in May For Dravet, now it's 6th year, is open for registration! The challenge is to walk, run, swim or cycle 5km or 2km each and every day in the month of May and raise vital funds for Dravet Syndrome UK!

A look back on the research advancements made in Dravet Syndrome in 2025, including Dravet Syndrome UK's contributions.

Dravet Syndrome UK attended the American Epilepsy Society meeting in Atlanta in December 2025. Here's what we learned.