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• About Us
  • What We Do
  • Our Strategy 2021-2026
  • Meet the Team
    • Galia Wilson
    • Kelvin Hughes
    • John Lloyd
    • Teresa Finch
      • Family Support
    • Linzi Cowley
    • Neil Williamson
    • Claire Eldred
    • Natalie Perkins
  • Medical Advisory Board
    • Professor Helen Cross
    • Dr Elaine Hughes
    • Professor Sanjay Sisodiya
    • Professor Sameer Zuberi
    • Dr Andreas Brunklaus
    • Dr Julia Aram
    • Professor Mike Kerr
    • Amanda Tomalin
  • Safeguarding Policy
• About Dravet Syndrome
  • What is Dravet Syndrome?
    • Diagnosing Dravet Syndrome
    • Symptoms of Dravet Syndrome
    • A History of Dravet Syndrome
    • The Future of Dravet Syndrome
  • Genetics of Dravet Syndrome
    • SCN1A and Dravet Syndrome
    • Genetic Changes Beyond SCN1A
    • Genetic Testing
    • Gene Therapies in Dravet Syndrome
  • Living with Dravet Syndrome
  • Seizure Types
    • Initial Seizures
    • Other Seizures
    • Changes to Seizure Patterns
    • Nocturnal (Night-time) Seizures
    • Talking About SUDEP
  • Comorbidities
    • Autistic Spectrum Disorder (ASD)
    • Attention Deficit-Hyperactivity Disorder (ADHD)
    • Dysautonomia
    • Growth and Nutrition Concerns
    • Movement and Mobility
    • Infections and Immune Problems
    • Sleep Problems
    • Behaviours That Challenge
  • Treatments and Outcomes
    • Types of Medication
    • Ketogenic Diet
    • Emergency Medication and Protocols
      • Emergency Protocol Videos
    • Additional Therapies
    • New and Emerging Treatments
    • Vagus Nerve Stimulation (VNS)
  • Transition to Adulthood
    • Preparing for Transition
    • Impact on Family Life
    • Guidance and Further Information
• For Healthcare Professionals
  • Professional Conference
    • London 2019
    • Presentations from London 2019
    • Liverpool 2017
  • Downloadable Guides
  • COVID-19 - Useful Resources for HCPs
• For Families
  • Dravet Journeys
  • Supporting Siblings
    • Ellie's Story
  • Center Parcs Weekend
  • Parent/Carer Conference
    • Parent/Carer Conference 2019
    • Speaker videos
      • New and Emerging Treatments for Dravet Syndrome
      • Genetics and Gene Therapy
      • Emergency Protocols and Rescue Medications
      • Quality of Life and 10-Year Follow Up Study
      • Sleep and Dravet Syndrome - Current Thinking
    • Parent/Carer Conference 2017
  • In Loving Memory
  • Remembrance Wall
• Apply for Grants
  • Seizure Monitor Fund
    • Pulse Oximeter Machine
    • MedPage Epileptic Seizure Monitor
    • Video Monitor
    • Fingertip Pulse Oximeter
    • NightWatch Epilepsy Seizure Detection
  • 16+ Assistance Fund
  • Super Siblings Award
  • Family Gathering Grant
  • Center Parcs Grant
  • Bereavement Fund
• Fundraising
  • Fundraising Ideas
  • Why Fundraise for Us?
  • Fundraising Downloads
  • Fundraising Tips
  • DSUK Butterfly Bunting
  • Snowdon Challenge Climb
  • Run for Dravet Challenges
    • Hackney Half Marathon
    • Cardiff Half Marathon
    • Bath Half Marathon
    • Alton Towers 10K
    • Edinburgh Half Marathon
    • Manchester Half Marathon
    • Inflatables 5K
    • Local Events
• COVID-19 and Dravet Syndrome
  • COVID-19 Guidance - FAQs & Webinar Series
  • Support Services
  • 16+ Assistance Fund - COVID-19
  • Seizure Monitor Fund
  • COVID-19 Support - Useful Resources
  • Family Wellness During COVID-19
  • COVID-19: Focus on Adults with Dravet Syndrome Webinar
  • Summary of guidance on new national restrictions in the UK
  • Watch our 'COVID-19 and Dravet Syndrome: Latest Updates' webinar
  • DSUK survey
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• Funding Medical Research
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