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  • Meet the Team
    • Galia Wilson
    • Kelvin Hughes
    • John Lloyd
    • Teresa Finch
      • Family Support
    • Helen Evans
      • Q&A with Helen Evans, Director, DSUK
    • Linzi Cowley
    • Neil Williamson
    • Claire Eldred
  • Medical Advisory Board
    • Professor Helen Cross
    • Dr Elaine Hughes
    • Professor Sanjay Sisodiya
    • Professor Sameer Zuberi
    • Dr Andreas Brunklaus
  • Funding Medical Research
  • Safeguarding Policy
• About Dravet Syndrome
  • What is Dravet Syndrome?
    • Diagnosing Dravet Syndrome
    • Symptoms of Dravet Syndrome
    • A History of Dravet Syndrome
    • The Future of Dravet Syndrome
  • Genetics of Dravet Syndrome
    • SCN1A and Dravet Syndrome
    • Genetic Changes Beyond SCN1A
    • Genetic Testing
    • Gene Therapies in Dravet Syndrome
  • Living with Dravet Syndrome
  • Seizure Types
    • Initial Seizures
    • Other Seizures
    • Changes to Seizure Patterns
    • Nocturnal (Night-time) Seizures
    • Talking About SUDEP
  • Comorbidities
    • Autistic Spectrum Condition (ASC)
    • ADHD & Behavioural Difficulties
    • Dysautonomia
    • Growth and Nutrition Concerns
    • Movement and Mobility
    • Infections and Immune Problems
    • Sleep Problems
  • Treatments and Outcomes
    • Types of Medication
    • Ketogenic Diet
    • Emergency Medication and Protocols
      • Emergency Protocol Videos
    • Additional Therapies
    • New and Emerging Treatments
  • Transition to Adulthood
    • Preparing for Transition
    • Impact on Family Life
    • Guidance and Further Information
• For Healthcare Professionals
  • Professional Conference
    • London 2019
    • Presentations from London 2019
    • Liverpool 2017
  • Downloadable Guides
  • COVID-19 - Useful Resources for HCPs
• For Families
  • Dravet Journeys
  • Super Siblings
  • Center Parcs Weekend
  • Parent/Carer Conference
    • Parent/Carer Conference 2019
    • Speaker videos
      • New and Emerging Treatments for Dravet Syndrome
      • Genetics and Gene Therapy
      • Emergency Protocols and Rescue Medications
      • Quality of Life and 10-Year Follow Up Study
      • Sleep and Dravet Syndrome - Current Thinking
    • Parent/Carer Conference 2017
  • In Loving Memory
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  • Seizure Monitor Fund
    • Pulse Oximeter Machine
    • MedPage Epileptic Seizure Monitor
    • Video Monitor
    • Fingertip Pulse Oximeter
  • 16+ Assistance Fund
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  • Bereavement Fund
• Fundraising
  • fundraising-ideas
  • Why Fundraise for Us?
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  • DSUK Bunting and Downloadable Templates
• COVID-19 and Dravet Syndrome
  • COVID-19 Guidance - FAQs & Webinar Series
  • Support Services
  • 16+ Assistance Fund - COVID-19
  • Seizure Monitor Fund
  • COVID-19 Support - Useful Resources
  • Family Wellness During COVID-19
  • COVID-19: Focus on Adults with Dravet Syndrome Webinar
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