Seizure Monitor Fund
As anyone who cares for a child or adult with Dravet Syndrome knows, seizure monitoring can save lives. Unfortunately, the most effective monitors are expensive. We have been running our Seizure Monitor Fund since 2009 to provide access to monitors for all families who need them.
Families can apply to us for their choice of one of the following monitoring systems: Pulse Oximeter Machine, Video Monitor or MedPage Epileptic Seizure Monitor. Families also have the option to apply for a Fingertip Pulse Oximeter. This is not an alarm, but is useful for monitoring sats (oxygen saturation levels in the blood) during a seizure and when out and about.
Find out more about our monitors
Selecting a monitoring system that is right for you and your family is a very personal choice - what works for some families may not work for others. Click on the images below to find out more about the monitoring devices available via this fund.
How to apply for a monitor
As with our other assistance programmes, our Seizure Monitor Fund is not means tested, but parents/carers do need to provide a letter confirming a diagnosis of Dravet Syndrome. To apply for a monitor, please log into your DSUK profile. If you haven't already registered with us, you will need to do so first (visit our 'Join Us' page to register). Once logged into your DSUK profile, follow the links on-screen to apply.
Monitor repair and replacement
The monitors that DSUK funds are essential to our families and we realise that when these are broken or no longer work, it has a fundamental impact on their lives.
Therefore, our trustees have decided that for 2020/21, we will offer a repair or replacement scheme for families who have had either a Emfit, Medpage, Summer infant Video or Pulseoximeter previously supplied by DSUK.
If the monitor funded by DSUK is over 5 years old and has developed a fault do contact Linzi.firstname.lastname@example.org with a description of the issue and we will see if we are able to fund a replacement or arrange a repair. This will be on a case by case basis and this service can be withdrawn at any time.
To be eligible for a repair or replacement, we require the old monitor to be sent back to us at DSUK, PO Box 756, Chesterfield, S43 9EB. We would also like to remind families that if they are no longer using their Pulseoximeter this can be returned for refurbishment and this enables us to send onto another family at a reduced cost to the charity therefore enabling us to help more families.
Click here for more details about our monitor repair and replacement policy.
Pulse Oximeter Machine
Pulse Oximeters monitor an individual’s heart rate and oxygen levels.
Fingertip Pulse Oximeter
A small, portable, battery-operated device useful for monitoring a child or adult with Dravet Syndrome during a seizure and when out and about.
Video monitors are helpful visual tools for monitoring the activities of children or adults with Dravet Syndrome when they are out of immediate sight.
MedPage Epileptic Seizure Monitor
The MedPage 'mattress' monitor works via a sensor, which is positioned under the mattress and plugged into an alarm. A new model also now includes a wifi recording camera.
Thank you to the DM Thomas Foundation for Young People for providing a generous award to DSUK, enabling us to fund 14 pulse oximeters for young people up to the age of 25.
Find out more about the DM Thomas Foundation for Young People here.