Dravet Syndrome UK welcomes Stephanie Smith to Board of Trustees
Posted 26th June 2024 in News
We’re delighted to announce the appointment of Stephanie Smith to the Board of Trustees for Dravet Syndrome UK (DSUK),
News | Dravet Syndrome UK
Little Moments Matter film launched for Dravet Syndrome Awareness Day
Posted 23rd June 2024 in News
A special film called ‘Little Moments Matter’ to mark Dravet Syndrome Awareness day 2024
Dravet Syndrome UK and Epilepsy Research Institute partner to invest in two future leaders in Dravet Syndrome and epilepsy research
Posted 6th June 2024 in News
We are incredibly proud to announce two unique research projects in collaboration with the Epilepsy Research Institute.
Study finds half of people living with Dravet Syndrome experience feeding problems
Posted 30th April 2024 in News
The study highlights that feeding difficulties are very common in Dravet Syndrome, affecting 52% of those with the condition and up to one in five may need a gastrostomy (or feeding tube) at some point.
Dravet Syndrome UK appoints first Head of Fundraising
Posted 26th April 2024
Tania Lewis has been appointed as Dravet Syndrome UK’s first Head of Fundraising.
Dravet Syndrome UK bolsters team with new Head of Marketing and Communications appointment
Posted 25th January 2024 in News
Katherine Raven has been appointed as Dravet Syndrome UK’s Head of Marketing and Communications following the promotion of Claire Eldred to Director of the charity last year.
Dravet Syndrome UK’s Family Survey makes an impact at the American Epilepsy Society (AES) meeting
Posted 3rd December 2023 in News
Results from the DSUK Family Survey describe the profound impact that living with Dravet Syndrome has on families.
New study aims to transform understanding of Dravet Syndrome and SCN1A-related epilepsies
Posted 28th November 2023 in News
The SCN1A Horizons Natural History study recruits first patients
The Epilepsy Research Institute joins forces with Dravet Syndrome UK to develop a future leader in Dravet Syndrome research
Posted 2nd October 2023 in News
We're delighted to announce a funding collaboration with the new Epilepsy Research Institute on their inaugural grant round.
Axis Spine Technologies CFO Alex Williams joins Dravet Syndrome UK as Trustee and Treasurer
Posted 26th September 2023 in News
We’re delighted to announce the appointment of Alex Williams as Trustee and Treasurer for Dravet Syndrome UK
A special thank you for a phenomenal #EveryDayinMay4Dravet 2023!
Posted 31st July 2023 in News
A huge congratulations and thank you to Tamara and everyone who took part, raised funds and awareness, and donated to year 3 of #EveryDayinMay4Dravet!
Watch our new video for Dravet Syndrome Awareness Day 2023
Posted 23rd June 2023 in News
Please share our film and help us build more awareness of the impact of Dravet Syndrome.
