Our take on key insights from today’s sessions at the BPNA.
News | Dravet Syndrome UK
Survey results provide new data on risks, impact and outcome of COVID-19 in people affected by Dravet Syndrome
Posted 20th October 2020 in News
Data from a survey conducted by Dravet Syndrome UK (DSUK), an independent charity, provides new evidence on the impact of COVID-19 among children and adults with Dravet Syndrome, including the social and psychological impact of shielding.
Cannabidiol (Epidyolex) approved in Scotland for individuals living with Dravet Syndrome, a life-limiting epilepsy
Posted 7th September 2020 in News
DSUK welcomes the availability of Epidyolex via NHS Scotland as a treatment option for individuals living with Dravet Syndrome
Posted 24th June 2020 in News
What has life in lockdown meant for UK families with a life-limiting epilepsy, known as Dravet Syndrome & how has DSUK helped? Watch our short video to find out.
Posted 7th April 2020 in News
On Monday 30th March, Professor Cross, a globally-recognised authority on Dravet Syndrome and Chair of our Medical Advisory, presented a webinar on the implications of COVID-19 for Dravet individuals.
Posted 4th March 2020 in News
Guidance from the Dravet Syndrome UK Medical Advisory Board
Posted 18th February 2020
A wrap up of all our news from the past six months, and a preview of events coming up in 2020.
Posted 17th February 2020 in News
Professor Helen Cross is appointed to the newly-created role of Chair and Dr Andreas Brunklaus joins DSUK's panel of leading experts in Dravet Syndrome.
Posted 5th December 2019 in News
Our biennial conference recently took place at the Tower Hotel in London. Across two days we brought together over 250 professional & parents/carers with one goal in common - sharing the latest knowledge on Dravet Syndrome.
Posted 12th November 2019
We welcome the addition of Epidyolex (cannabidiol) to help treat Dravet Syndrome, a rare neurological condition with limited treatment options. This decision offers new hope to patients & their families searching for better seizure control.
Posted 16th September 2019
Dravet Syndrome UK (DSUK) has appointed Helen Evans as its first Director. Helen brings a wealth of experience to the role, having worked as a charity director since 2008.