Dravet Syndrome UK’s Family Survey makes an impact at the American Epilepsy Society (AES) meeting
Posted 3rd December 2023 in News
Results from the DSUK Family Survey describe the profound impact that living with Dravet Syndrome has on families.
News | Dravet Syndrome UK
New study aims to transform understanding of Dravet Syndrome and SCN1A-related epilepsies
Posted 28th November 2023 in News
The SCN1A Horizons Natural History study recruits first patients
The Epilepsy Research Institute joins forces with Dravet Syndrome UK to develop a future leader in Dravet Syndrome research
Posted 2nd October 2023 in News
We're delighted to announce a funding collaboration with the new Epilepsy Research Institute on their inaugural grant round.
Axis Spine Technologies CFO Alex Williams joins Dravet Syndrome UK as Trustee and Treasurer
Posted 26th September 2023 in News
We’re delighted to announce the appointment of Alex Williams as Trustee and Treasurer for Dravet Syndrome UK
A special thank you for a phenomenal #EveryDayinMay4Dravet 2023!
Posted 31st July 2023 in News
A huge congratulations and thank you to Tamara and everyone who took part, raised funds and awareness, and donated to year 3 of #EveryDayinMay4Dravet!
Watch our new video for Dravet Syndrome Awareness Day 2023
Posted 23rd June 2023 in News
Please share our film and help us build more awareness of the impact of Dravet Syndrome.
Dravet Syndrome Awareness Day 2023 - What is Dravet Syndrome?
Posted 21st June 2023 in News
Dravet Syndrome is a devastating and life-limiting epilepsy. Find out more and help spread awareness.
Cricketing community comes together to support Dravet Syndrome UK
Posted 12th May 2023 in News
Surrey and Middlesex Cricket Clubs support Matt Dunn and family in a fitting tribute to his daughter, Florence.
Claire Eldred appointed Director at Dravet Syndrome UK
Posted 6th April 2023 in News
Dravet Syndrome UK (DSUK) has appointed Claire Eldred as its Director..
New clinical trial opening in treatment of status epilepticus
Posted 17th February 2023 in News
CRESCENT is a new randomised clinical trial opening in treatment of status epilepticus
NEW Family Guide launched on International Epilepsy Day
Posted 13th February 2023 in News
We've launched an updated and expanded version of our Family Guide! Find out more here.
