In Loving Memory

Dravet Syndrome is a serious, potentially life-threatening condition. This page, comprising our Wall of Remembrance and In Memory stories is a tribute to the memory of those who have sadly lost their lives too soon due to Dravet Syndrome.

Dravet Syndrome Remembrance Wall

Our permanent Wall of Remembrance is a tribute to all those who are, devastatingly, no longer with us. Any family who has experienced a bereavement due to Dravet Syndrome is welcome at any time to submit their loved one’s name to be included on the Remembrance Wall - just email us at

Remembrance Wall - a list of names in tribute to all those lost too soon to Dravet Syndrome