In Loving Memory

Dravet Syndrome is a serious, potentially life-threatening condition.This page is a tribute to those who have lost their lives to Dravet Syndrome.

Their Stories

Remembering the lives of loved ones, lost too soon to Dravet Syndrome.

In loving memory of Jake Smith

In loving memory of Oliie Johnson

In loving memory of Max Miller Prior

In Loving Memory of Poppy Hunt

In loving memory of Joseph Matthew Nolan

In loving memory of Damian Gormley

Twins Darcie and Evie were both diagnosed with Dravet Syndrome at 12 months old. Watch their video story.