What is Dravet Syndrome?

Dravet Syndrome is a rare neurological condition that encompasses treatment-resistant epilepsy, intellectual disability and a spectrum of associated conditions (known as ‘comorbidities’), which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, eating and sleep.


Every child or adult with Dravet Syndrome is different, with some affected more severely than others or with different emphasis of symptoms. But for all, the condition is complex, symptoms can be interrelated and seizures can be highly unpredictable.

Dravet Syndrome is typically characterised by multiple, frequent, treatment resistant and often prolonged seizures. You can find out more about the different types of seizures here.

Epilepsy is just one part of Dravet Syndrome. After the first year of life, the child’s development typically slows down or regresses, sometimes severely. Alongside continuing seizures, a wide range of conditions (‘comorbidities’) and issues may arise. You can find out more about comorbidities here

Click on the images below to find out more about Dravet Syndrome or download our Understanding Dravet Syndrome leaflet.

Dravet Stories

Real-life insights into living with Dravet Syndrome, shared by our amazing community of Dravet families,

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