Diagnosing and Treating Dravet Syndrome
Dravet Syndrome is a rare and complex neurological condition that can have a devastating impact on families. It can be effectively managed with appropriate treatment, yet it is under-diagnosed in the UK.
Getting a confirmed diagnosis, ideally supported by a genetic test, is important at any age. Diagnosis can lead to better-informed treatment choices and improved access to additional therapies and services.
Healthcare professionals have a key role to play in improving the diagnosis and management of this condition.
Click on the links below for more information on the diagnosis and treatment of Dravet Syndrome.
Characteristics of Dravet Syndrome
A summary of the typical features of Dravet Syndrome.
What to do if you suspect Dravet Syndrome
Don't delay if you suspect Dravet - diagnosis and intervention is critical.
Testing for Dravet Syndrome
Dravet Syndrome can be confirmed with a genetic test.
The SCN1A Prediction Model
Is it GFS+ or Dravet Syndrome? This internationally validated tool can aid earlier diagnosis.
Treatment and Management of Dravet Syndrome
Find out about approved treatments and medications to avoid.
Guidelines, key publications and other resources
Quick links and other educational resources.