Support for families
Find out more about the support we provide to families affected by Dravet Syndrome, including opportunities for connection, our assistance grants, and how to join us.
Our next Dravet Syndrome UK Parent/Carer Conference will take place in November 2027. The exact date, venue and format are to be confirmed.
"You learn so much from all the Professionals who are there at the Conference. You get to meet other families who are in the same circumstances as you and it makes such a difference. You go away from the Conference just feeling more empowered – more empowered because of information that you've been given and more empowered because you know you're not alone."Scott, Dad to Thomas
Find out more about the support we provide to families affected by Dravet Syndrome, including opportunities for connection, our assistance grants, and how to join us.
Whether you’re looking to fundraise to support our vital work, or connect with other families living with Dravet Syndrome, you’ll find details of all our events here.
Every Dravet Syndrome journey is unique. Read more about the impact of this complex condition here.