DSUK Conference – Parent / Carer Day

Our next Dravet Syndrome UK Parent/Carer Conference will take place in November 2027. The exact date, venue and format are to be confirmed.

Dravet Syndrome UK hosts a conference for parents and carers every other year, with the next event due to take place in November 2027. We’re working hard on the plans for next year, so watch this space for further announcements and details.

Our conferences cover the latest information about Dravet Syndrome, treatment and research updates and also provide expert guidance on the practical aspects of living with Dravet Syndrome.

"You learn so much from all the Professionals who are there at the Conference. You get to meet other families who are in the same circumstances as you and it makes such a difference. You go away from the Conference just feeling more empowered – more empowered because of information that you've been given and more empowered because you know you're not alone."
Scott, Dad to Thomas

Support for families

Find out more about the support we provide to families affected by Dravet Syndrome, including opportunities for connection, our assistance grants, and how to join us.

Our events

Whether you’re looking to fundraise to support our vital work, or connect with other families living with Dravet Syndrome, you’ll find details of all our events here.

Dravet journeys

Every Dravet Syndrome journey is unique. Read more about the impact of this complex condition here.