Our Dravet Journeys
Our Dravet Journeys are a very popular area of our website. Stories shared by families living with Dravet Syndrome can help to raise awareness amongst other families affected by the condition, especially those who are newly diagnosed. They also help to highlight the challenges and daily impact of Dravet Syndrome to the general public and media, in addition to health and care professionals.
If you’re interested in sharing your own Dravet Journey, please contact our Marketing and Communications Manager at [email protected] for more information. Please note that we can only share the stories of families who are registered with us.
Read our Dravet Journey's
Hear more from our Dravet community and learn about their journey from diagnosis all the way to their life today.
Register as a case study for the media
As part of our goal to further knowledge and awareness of Dravet Syndrome, we frequently liaise with the media and share the unique stories of our brave and inspiring Dravet community. Thanks to families selflessly sharing their experiences, we have built a collection of media case studies which have enabled us to reach broader audiences and gain regional and national coverage for Dravet Syndrome.
We know that sharing your story with the media can be daunting, which is why the DSUK Communications team are on hand to support and brief you every step of the way.
If you too you would like to share your family’s story with the media, please contact our Marketing and Communications Manager at [email protected] for more information. Please note that we can only share the stories of families who are registered with us.
Media coverage
