About Dravet Syndrome
Dravet Syndrome is a rare neurological condition causing severe, difficult to control seizures, alongside varying degrees of learning disability and other issues, such as autism, mobility problems, speech difficulties and feeding problems.
In this section, we provide detailed information about all aspects of Dravet Syndrome. Click on the images below to find out more.
What is Dravet Syndrome?
An introduction to Dravet Syndrome, including causes, symptoms and how to get diagnosed.
Living with Dravet Syndrome
Adapting to live with Dravet Syndrome can be challenging. Here you can watch two videos, featuring families from our Dravet community, that give an insight into every day life with Dravet Syndrome.
A guide to understanding the many different types of seizures that children & adults with Dravet Syndrome experience.
Find out about the spectrum of secondary conditions (comorbidities) that Dravet children and adults may develop.
Treatments and Outcomes
Find out about the different treatments available for Dravet Syndrome.
Transition into Adulthood
Essential guidance and advice for navigating the changes to medical & social care, education, finance and legal rights that occur at 16-plus.