Our Research

Funding research is an essential part of our mission to bring hope to families living with Dravet Syndrome and improve their lives.

Although understanding of this devastating condition has improved considerably over recent years, many challenges remain. There is an urgent need for research that improves how we diagnose, treat and manage Dravet Syndrome, and for better understanding of the impact the condition has on family life.

Since 2011, we have awarded more than £675,000 to research into Dravet Syndrome.

With guidance from our world-class Medical Advisory Board, we work closely with a wide range of renowned research partners. This includes Great Ormond Street Hospital Children’s Charity, Dravet Syndrome European Federation and Glasgow University.

Find out more about our research:

Thank you for supporting research into Dravet Syndrome

Thank you to our amazing supporters and sponsors for making research into Dravet Syndrome possible. With your continued help, we’re seeing advances in the understanding, diagnosis and treatment of the condition. Together, we’re making a positive difference to the lives of all those affected by Dravet Syndrome.

Donate now to support families affected by Dravet Syndrome