Information & Support

About Dravet Syndrome

Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK. Find out more about Dravet Syndrome here.

Support for Families

We provide information and practical support for families who are navigating the day to day challenges of living with Dravet Syndrome. We also award grants and host community activities. We believe that Every Family Counts. Read more here.

Support for Healthcare Professionals

We share information and useful resources to help further the exchange of knowledge and understanding about Dravet Syndrome among professionals, enabling earlier diagnosis and accessible pathways to the best possible treatment and care. Read more here.

Research

We ensure that the needs of families living with Dravet Syndrome are at the heart of the design and delivery of ongoing and new research projects. You can read more about research we've funded and key findings from global studies here.