Posted 7th September 2020 in News
DSUK welcomes the availability of Epidyolex via NHS Scotland as a treatment option for individuals living with Dravet Syndrome
Posted 2nd September 2020 in News
We’re delighted to announce that Neil Williamson, a Children’s Epilepsy Nurse Specialist, is joining the DSUK board of Trustees.
Posted 24th June 2020 in News
What has life in lockdown meant for UK families with a life-limiting epilepsy, known as Dravet Syndrome & how has DSUK helped? Watch our short video to find out.
Posted 7th April 2020 in News
On Monday 30th March, Professor Cross, a globally-recognised authority on Dravet Syndrome and Chair of our Medical Advisory, presented a webinar on the implications of COVID-19 for Dravet individuals.
Posted 4th March 2020 in News
Guidance from the Dravet Syndrome UK Medical Advisory Board
Posted 18th February 2020
A wrap up of all our news from the past six months, and a preview of events coming up in 2020.
Posted 17th February 2020 in News
Professor Helen Cross is appointed to the newly-created role of Chair and Dr Andreas Brunklaus joins DSUK's panel of leading experts in Dravet Syndrome.
Posted 5th December 2019 in News
Our biennial conference recently took place at the Tower Hotel in London. Across two days we brought together over 250 professional & parents/carers with one goal in common - sharing the latest knowledge on Dravet Syndrome.
Posted 12th November 2019
We welcome the addition of Epidyolex (cannabidiol) to help treat Dravet Syndrome, a rare neurological condition with limited treatment options. This decision offers new hope to patients & their families searching for better seizure control.
Posted 16th September 2019
Dravet Syndrome UK (DSUK) has appointed Helen Evans as its first Director. Helen brings a wealth of experience to the role, having worked as a charity director since 2008.
Posted 8th February 2018 in News
This year Dravet Syndrome UK will be celebrating 10 years of providing hope for families with life-limiting epilepsy and to mark this momentous occasion will be holding a fundraising dinner on Thursday the 15th March 2018...
