Welcoming Neil Williamson as our new Trustee
We’re delighted to announce that Neil Williamson, a Children’s Epilepsy Nurse Specialist who runs his own independent nursing and training service, is joining the DSUK board of Trustees.
I’m really excited to take up this new role with DSUK. It's a charity I am proud to continue to be part of in the new role as trustee
DSUK’s community of families living with Dravet Syndrome continues to grow, with 27 new families joining since January 2020. At the same time, the medical and scientific environment is changing, with greater awareness and recognition of Dravet Syndrome and new treatments in development.
To help guide DSUK forward through these exciting times, the Trustees identified a need to appoint someone with specialist healthcare experience to complement the existing board of Galia Wilson and Kelvin Hughes (both parents of children with Dravet Syndrome) and John Hughes (a specialist in charity governance). Neil Williamson is the perfect fit!
As a nurse with 20 years’ experience in epilepsy and neurology, Neil has a long-standing interest in Dravet Syndrome. He has worked with children and young people with Dravet Syndrome in hospitals, hospices and the community, and of course, he has been a much-valued and hands-on member of our Medical Advisory Board. We’re thrilled Neil is making the transition to join the Trustees, bringing a wealth of expertise, enthusiasm and passion.
Speaking about his appointment, Neil said, "I’m really excited to take up this new role with DSUK. They’ve created a fantastic, supportive community and provide vital services that help improve the lives of all those affected by Dravet Syndrome. It's a charity I am proud to continue to be part of in the new role as trustee. I’m looking forward to working closely with the other Trustees to continue helping more and more people living with Dravet Syndrome”.
For more information about the DSUK team of Trustees and staff, click here.