Updates from the British Paediatric Neurology (BPNA) virtual conference, 7th January 2021.

Posted 7th January 2021 in News, Blog

Dravet Syndrome has been a key talking point during today’s BPNA meeting, with many interesting points raised by our Medical Advisory Board members - Professor Helen Cross (chair), Professor Sameer Zuberi and Dr Andreas Brunklaus. In addition, our chair, Galia Wilson presented on the impact of COVID-19 on families living with Dravet Syndrome and our director, Helen Evans, has been taking part in a meeting with 17 other charities.

Here’s our take on key insights from today’s sessions:

Finally, we want to say thank you to BPNA for facilitating a very productive virtual charities meeting. 17 charities including DSUK presented. It was great to have this opportunity to share experiences and collaborate on issues that matter to patients & their families.