Family Guide Resources

Our Family Guide, published in January 2023, is a comprehensive resource, reflecting the complex nature of Dravet Syndrome and its effect on every area of life. 

Throughout the guide, we've signposted families to this webpage, where we've housed all of the links through to more detailed information, the latest updates and places where you can find out more or access further support. Links and topics are ordered corresponding to each of the four parts of the Family Guide and by page number.

If you need support, please contact us on