Part 2 - Characteristics of Dravet Syndrome

Pages 18-41

Page 26 

Free seizure monitors

Apply to Dravet Syndrome UK for a free seizure monitoring system: click here

Pages 29-30 

Autism spectrum disorder

National Autistic Society: information on autism spectrum disorder

Page 31 

Challenging behaviour

The Challenging Behaviour Foundation: help, support and online resources for understanding and managing challenging behaviours

Attention deficit hyperactivity disorder

ADHD Foundation: helpful advice and tips for living with ADHD 

Page 35

Wheelchair support

Scope: information on wheelchairs and the wheelchair voucher scheme

The Dravet Syndrome UK 16+ Assistance Fund may be helpful for improving or upgrading a wheelchair, or helping to customise your living arrangements to be more wheelchair-friendly 

Page 33 

Speech and language therapists

Any health professional can refer you for NHS speech and language therapy. The Association of Speech and Language Therapists in Independent Practice (ASLTIP) can help you find an independent (private) speech and language therapist

Page 39 

Coping with night-time seizures

Apply to the Dravet Syndrome UK Seizure Monitor Fund: click here 

Page 40 

Supplements to help with sleep

Cerebra: advice on managing sleep problems, specifically aimed at children with brain conditions, including a sleep guide you can download