Part 3 – Managing Dravet Syndrome

Jazz Pharmaceuticals provided funding for this guide via an unrestricted grant. Jazz had no other involvement in the development or content of the guide.

Pages 42-53

Page 43

Medications

A summary of medications that your medical team might prescribe is included on our website: click here

Page 45

Ketogenic diet

Matthew’s Friends: a charity specialising in all types of ketogenic dietary therapy

Page 46

Social/Play therapy

British Association of Play Therapists: more information on play therapy

Page 48 

You have the right to ask for a referral for a second opinion

If you’re finding it difficult to get a referral you need to speak to – England or Wales: the NHS Patient Advice and Liaison Service (PALS) in your local hospital | Scotland: Patient Advice & Support Service (PASS) | Northern Ireland: Patient & Client Council (PCC) 

Page 50

Communication passports

Information about creating a communications passport

Page 51

Emergency medications

A list of medications is included on our website: click here

You can find out more about emergency protocols on our website: click here