Part 3 - Managing Dravet Syndrome

Pages 42-53

Page 43 


A summary of medications that your medical team might prescribe is included on our website: click here 

Page 45 

Ketogenic diet

Matthew’s Friends: a charity specialising in all types of ketogenic dietary therapy 

Page 46 

Social/Play therapy

British Association of Play Therapists: more information on play therapy 

Page 48 

You have the right to ask for a referral for a second opinion

If you’re finding it difficult to get a referral you need to speak to - England or Wales: the NHS Patient Advice and Liaison Service (PALS) in your local hospital | Scotland: Patient Advice & Support Service (PASS) | Northern Ireland: Patient & Client Council (PCC) 

Page 50 

Communication passports

Information about creating a communications passport 

Page 51 

Emergency medications

A list of medications is included on our website: click here 

You can find out more about emergency protocols on our website: click here