My role at DSUK is to look after the daily running of the charity. I'm also responsible for making sure we that we're working to deliver against the 5-year strategy set by our Board of Trustees. We want to reach more families, to deliver research that puts family needs first, to improve awareness and understanding amongst professionals, particularly in adult neurology and social services, and to give families the tools and support needed to assert their rights.
I initially joined the DSUK team in March 2020 as Head of Marketing and Communications. Prior to joining DSUK, I worked in healthcare communications for more than 15 years.
It's a privilege to be part of the Dravet Syndrome community and I am inspired every day by the amazing children and adults living with this condition and their families.