Magical moments at our Family Weekend
Watch a short film showing some of the many wonderful moments at our Family weekend in 2025 and what you can expect if you are joining us this year!
The magic of our Annual Family Weekend Away:
What to expect;
- An opportunity for those living with Dravet Syndrome to experience a family holiday in a safe and welcoming environment.
- Plenty of opportunity for parents to meet, unwind and talk with others who really understand what living with Dravet Syndrome means, sharing experiences and knowledge.
- Activities for siblings to meet, chat and have fun with other youngsters who are in exactly the same position, without having to feel that they need to explain their brother or sisters condition, which so often happens.
- Two ambulances & medical crews with us onsite for the duration of the weekend, to respond to emergencies. We know that severe, frequent and prolonged seizures mean families affected by Dravet Syndrome need to be close to urgent medical attention at all times.
