Every Day in May 4 Dravet

Join in this epic challenge, now in it's 4th year, masterminded by Tats Ward, Auntie to Dominic who lives with Dravet Syndrome.

There's two ways you can get involved:

Register here for the full 31 day challenge!

Or, join us for one 5km run in Regent's Park, London at 10am on Saturday 4th May!

The full 31-day, Every Day in May 4 Dravet Challenge

Supporter Tats Ward, was inspired to set up the #EveryDayinMay4Dravet challenge in 2021 when she was unable to visit her seven-year-old nephew, Dominic, who lives with Dravet Syndrome, in hospital during the COVID lockdowns. Since 2021 the challenge has grown tremendously, from 40 participants that first year, to 280 amazing adults and children taking part in 2023 where a phenomenal £85,000 was raised, helping us to support more families, educate more professionals and fund more research.

This year, Tats is on a mission to go bigger and better, to raise even more funds and awareness of Dravet Syndrome. While the challenge is undoubtedly a tough one, the team, led by Tats, will provide you with tons of encouragement, motivation and help you to keep your energy levels up throughout the whole month. The challenge is to cover 5km or 2km each and every day in the month of May. You can do that at whatever time of day you like, and however you like - mix it up by walking the dog one day and cycling the next, or run every single day - however you do it, you're very welcome to this epic team of incredible supporters around the globe. 

Register here for Every Day in May 4 Dravet.

The group run, 5km in Regent's Park on Saturday 4th May

Tats will lead a group run on Saturday 4th May at Regent's Park. The run will begin at 10am, but do arrive early for a fantastic warm-up at 9.40am. 

You don't have to be signed up to the full 31 days of the Every Day in May 4 Dravet challenge to take part in this group run. We're welcoming everyone who wants to get involved and cover 5km for Dravet! Spread the word and come join the fun.

Register here for the group run on 4th May

Challenge accepted?

Firstly, you're a superstar! Joining this epic challenge is such a brave thing to do and we are proud of you already. Secondly, thank you wholeheartedly for agreeing to raise funds and awareness of Dravet Syndrome by taking part - we think you're incredible.

Next steps:

• Set up your fundraising page on JustGiving here.
  
• We'll send you a welcome pack by post (to the lead booker for your group). This includes a free fundraising pack and the DSUK tops you've purchased for a greatly discounted price during registration. Please note that packs will be sent out in batches, at the end of each month for the full 31-day challenge.
• Let all your family, friends and networks know that you're taking part and invite others to join the fun!
• Start training - whether you're looking to complete one 5km, or complete the full 31-day challenge, make sure you're preventing injury by preparing yourself. If you're wanting to increase your distance and fitness, take a look at Couch to 5k as a starting point