"We all gave advice and asked questions – it was amazing. But mostly making bonds with people who are in the same position as me. I came away feeling wonderful, and with new friends who understand my life. I hope these can happen a lot more because it was very comforting and healing."Mum in attendance at a Parent & Carer Meetup in 2026
Our 2026 Schedule
We’ve planned locations across the UK to reach as many parents as possible. Please take a look at the dates below and book your place by clicking here.
Times will be either 11.30am – 2.30pm or 12pm – 3pm. Times and venues will be confirmed nearer the time in an email to all those who have registered to attend.
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Location
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Date
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Birmingham – The Old Joint Stock, 4 Temple Row, B2 5NY
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Friday, 27th February
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Chester – Brewhouse & Kitchen, Love St, CH1 1QY
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Friday, 20th March
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Aberdeen – The Dutch Mill Hotel, 7 Queen’s Rd, AB15 4NR
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Friday, 27th March
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Belfast – tbc
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Saturday, 18th April
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Bury St Edmunds – The Old Cannon Brewery, 86 Cannon St, IP33 1JR
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Friday, 22nd May
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Bristol – Hole in the Wall, 2 The Grove, Queen Square, BS1 4QZ
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Friday, 31st July
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Blackpool – West Coast Rock Cafe, 7 Abingdon St, FY1 1DG
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Friday, 31st July
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Canterbury – tbc
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Friday, 28th August
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Newcastle – City Tavern, 10 Northumberland Rd, NE1 8JF
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Friday, 25th September
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Milton Keynes – tbc
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Friday, 30th October
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Southampton – The Mayflower Village, 22-26 Commercial Rd, SO15 1GE
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Friday, 27th November
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Leeds – Lamb & Flag, 1 Church Row, Leeds, LS2 7HD
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Friday, 4th December
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Important Information
- One Meetup Per Person: To ensure as many parents and carers as possible can attend, we kindly ask that you choose one location to join us this year.
- Planning for 2027: Because Dravet Syndrome is a rare condition, we have to balance our locations based on where the highest concentrations of families live. If we aren’t coming to your immediate area in 2026, please know we are already planning to continue these meetups into 2027 to reach even more regions!
- These meetups are planned for parents/carers only but if you need to bring your child please include them on the booking form.
- Please note not all venues will be wheelchair accessible.
Register to attend at a location near you
We're looking forward to meeting new faces and catching up with friends at locations across the UK this year. You must be registered with Dravet Syndrome UK to attend.