Rare Disease Day 2026

Saturday 28th February

Rare Disease Day is just around the corner! Join us on Saturday 28th February to raise awareness of the 300 million plus people who are living with a rare disease worldwide, including everyone living with Dravet Syndrome.

Help us to spread the word by updating your profile picture and posting on your social media with our editable graphics! You can find out how to do this by reading the instructions below.

Social Media Profile Picture

Edit and share our social media profile picture here

Social Media Post Graphic

Edit and post this graphic to your social media feed to help raise awareness

Here’s how to edit and share:

Click here for our social media profile picture and click ‘view template’
Click here for our social media post graphic and click ‘view template’
Log in, or set up an account with Canva – it’s free!
Enter your name and click continue, then enter the sign-in code (check your junk/spam folder if you don’t receive this)
Click ‘open in editor’
Click ‘uploads’ and ‘upload files’
Select the image you’d like to use from your device – choose a nice one of the person you love living with Dravet Syndrome, or a group one of them with you and/or your family
The image will then preview – click on it to select it to add to the design
Drag and drop the image onto the circle placeholder in the middle of the design
Click the ‘Share’ button (or the symbol which looks like a letter tray and an upwards arrow 📤) and then click download
The download settings should already be correct, but ensure it says PNG in the file type
When the design has downloaded to your device, share it on your social media accounts, or add it as your profile picture